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Annual Sayville Run/Walk & BBQ to Cure Cystic Fibrosis

  

 


              

Sunday, July 29, 2007   4:00 PM
Long Island Maritime Museum
86 West Avenue
West Sayville , NY
Prices: Run: $25.00
Walk: $25.00
BBQ: $16.00
 
Online Reg. Closes: July 27, 2007 11:59 PM Pacific Time
Course Information: The race course is USATF Certified and is part of the Sayville Summer Series. Please visit www.sayvillesummerseries.com for more information.
Time: Registration begins at 4pm
Run/Walk begins at 5:30pm
Kids Fun Run begins at 6:30pm
Registration Information: Online Pre-registration for Run/Walk - $25.00
Day-of Registration for Run/Walk - $30.00
BBQ only - $16.00
BBQ is included for all registered runners and walkers.
T-shirts only guaranteed to runners and walkers who have pre-registered.

WHAT IS CYSTIC FIBROSIS?

Cystic Fibrosis is the nation's most common life threatening disease in the US, taking as many as three lives a day. One in 20 adults are symptom-less carriers of the disease.
The disease produces a thick, sticky mucus that clogs the respiratory & digestive systems. From an early age, most young patients need frequent hospitalization and close medical attention.
In August of 1989, researchers supported by the Cystic Fibrosis Foundation identified the gene responsible for causing cystic fibrosis (CF). The complex gene that causes CF also contains the answer to cure it. In 1993, the first gene therapy studies involving people with CF began. In 1997, the FDA approved the aerosolized form of Tobramycin, TOBI, which increases the concentration of the drug that goes to the actual site of the lung infection.
All of the scientific advantages that have extended and improved the quality of life for a young adult with CF can be made only with the help of the people like yourself. The money raised from the Run for Cystic Fibrosis will be invested in research that will soon make CF stand for Cure Found!
The Cystic Fibrosis Foundation was recently named one of the nation's top ten "charities you can trust" by Smartmoney, the magazine of the Wall Street Journal. The Foundation puts its money to work as efficiently as possible and is proud to receive such a recognition. 91% of all the money raised goes directly to research and with your help we will maintain this statistic.

Cystic Fibrosis Foundation
www.cff.org

 

 

             

 

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